News

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...
Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...
The Impact of the CF Community This month is a celebration of you — the individuals, families, and supporters who make up the CF community. You can join us by sharing your accomplishments, milestones, ...
What Is Gene Therapy? The cystic fibrosis transmembrane conductance regulator (CFTR) gene contains the instructions for making the CFTR protein. When there is a mutation — or alteration — in the ...
Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...
Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...
A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.
Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to ...
Use the list below to learn about lung transplant centers, including how many transplants each center has performed in the past six years — overall and for people with cystic fibrosis (Source: Organ ...
Cystic fibrosis is genetic disease that affects the lungs, pancreas, and other organs. It is progressive, meaning that it gets worse over time. There are close to 40,000 children and adults living ...
There was once a time not too long ago where I found myself walking a fine line between life and death. I was only 19, and my lung function had plummeted into the low 20s within a few months. It ...