Because the truth is that not everything is as it seems. The people who face these invisible battles of chronic illness are the courageous ones. They get through each day, hoping for few or no health ...

After our oldest son, Julian, was born and we took him home, the first six months went smoothly. His hemophilia diagnosis came up occasionally, but it didn’t directly affect our quality of life. We ...

Our family’s love for live theater is a bond we cherish. We make it a point to attend as many shows as we can in our area. I vividly recall the first time we saw the musical “Wicked” onstage. My ...

The endoscopy was performed by a doctor who’s in the same healthcare system as my hematologist, whom I see for my hemophilia A. The two specialists coordinated my care beautifully. After the procedure ...

He was in the middle of a task — not doing anything risky or dramatic. The scissors were a tool, nothing more. But that single comment hit harder than expected. Not because it was cruel, but because ...

The moment of escaping the heat into the cool brings more than physical relief. It’s a moment of sacred pause. The body relaxes, shoulders soften, and headaches begin to lessen. The best part is when ...

This permission to ask questions without fear changed me. I slowly began to find my voice. It wasn’t because I became an expert equivalent to a medical doctor, but because I learned that courage isn’t ...

To make it easier to share information with your care team and give them insight into what you are experiencing, keep a record of your pain’s duration and intensity, such as on a scale of 1 to 10. You ...

This was 2003, when I had laparoscopic surgery to treat endometriosis. Doctors had approached me as a carrier of hemophilia, rather than a hemophilia patient, and the plan didn’t work. I don’t ...