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Following Joe’s passing, longstanding volunteers Kate O’Donnell and Amy Barry stepped forward to carry the torch as Co-Chairs ...
Growing up, I participated in Great Strides in honor of my cousin who has CF. Today, I stride with even more purpose — now for my son, who was diagnosed with CF.
The CF Foundation expresses grave concern and strong opposition to the proposed cuts to Medicaid considered by Congress, ...
On behalf of the Cystic Fibrosis Foundation, we submit the following statement for the record expressing our grave concern and strong opposition to the proposed deep cuts to the Medicaid program ...
After gaining control of my health with Trikafta, I decided to pursue a career as a respiratory therapist. That’s when I realized that my own health journey had given me the empathy and compassion to ...
Watching my mother struggle with cystic fibrosis until she ultimately passed away was heartbreaking. I never knew anyone with CF other than the two of us. However, she instilled in me a deep sense of ...
While neither I nor anyone else in my family have CF, there are a lot of important people in my life who do, as I have had the privilege of providing care to adults with CF for over ten years. These ...
When my two children were diagnosed with CF, our lives were overtaken by treatments, hospital stays, and endless medications. The strain wasn’t just physical — it also deeply affected our mental ...
For many people, aging is an inevitable part of life, bringing with it the expected changes: wrinkles, slower metabolism, and the occasional creaky joint. But for those of us with cystic fibrosis, ...
As a Latina mother of a child with cystic fibrosis, I aim to raise CF awareness and combat stigma in the Latino community by advocating for understanding, care, and support for families like mine. As ...
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