News

Columnists G Shellye Horowitz, caught up in an art project, forgot that she was living with hemophilia and needed treatment. Oops.
Columnist Joe MacDonald shares lessons in humility after his son proves better equipped to help his younger brother write about hemophilia.
Last in a series. Read parts one and two. After our oldest son, Julian, was born and we took him home, the first six months went smoothly. His hemophilia diagnosis came up occasionally, but it didn’t ...
Columnist Joe MacDonald shares his practical advice for how to help a child define their identity beyond their hemophilia diagnosis.
Columnist G Shellye Horowitz struggles to find care for her gastrointestinal issues due to the shortage of medical providers in the U.S.
Many with hemophilia endure infantilizing by caregivers, most of it unintentional. Columnist Alliah Czarielle describes how to avoid this.
A caregiver needs respite from the duties of watching over a chronically ill patient, columnist Cazandra Campos-MacDonald writes.
For columnist Cazandra Campos-MacDonald, raising children with hemophilia involved finding the courage to ask lots of questions.
Periods can be stressful with hemophilia, but your care team, including your gynecologist and hematologist, can help to make a difference.
Columnist G Shellye Horowitz says that understanding which hemophilia treatments don't work in her body is as critical as knowing what does.